Monthly Archives: July 2016

My mortgage bill came, oh just kidding, that’s our therapy bill!

Imagine my surprise when I opened a bill for my son’s speech and OT and it read approximately $2700!  I had received one bill prior to this for $46, which I paid, but of course that payment is not reflected on this bill.  When I called the business office I was told that yes, they received that $46 but they didn’t know why it was not applied against this new huge balance.  Nor could they answer why I all of sudden got this huge bill.  I was referred to their billing specialist that I have been playing phone tag with for weeks.  Once I get a hold of the billing specialist and fix what’s wrong there, I get the pleasure of calling our insurance to find out what happened there since we have already met my son’s individual deductible, yet we received this bill and for some added fun we just received a bill for my son’s ear surgery for over $1000.  Life isn’t hard enough dealing with life’s obstacles, let alone the obstacles facing a child with autism that I now have to take hours away from him and my family to battle our insurance company.   It is hard enough to make ends meet today, how are all the parents of children with special needs surviving?  Here is a frightening fact, our family would be better off financially if my husband lost his job!  He would have 100% of his time to help with our children, he would get unemployment, we could apply for state medical benefits, and he would be able to access investments at his company that he is not allowed to while being employed!  No wonder this country is in trouble and has voted democratic.  We are encouraged to be dependent on the government and with a special needs child, how else could you survive.  The system is broken and my family and my child are suffering the consequences.

I Saw That One Coming

I just posted my last entry today even though I wrote it over two months ago.  I meant to come back and finish it but life happened.  My son had surgery, our family was hit with two stomach viruses in a month, school play rehearsals, summer camps, dog went missing, started working again and I threw out my back.  So, my back is still injured which makes it very hard to manage a very physical child with autism, the dog was never found which has left me with a sadness so deep that sometimes I can’t catch my breath and we have started speech and OT again.  The good news is that after my son’s surgery to put in tubes yet again and disintegrate his adenoids, he does seem more attentive and his speech therapist has noticed a drastic improvement.  The bad news is, just as I called it, my child has a new OT and he has not clicked with her.  He used to love OT and playing in the gym, now he can’t get out of there fast enough.  All he wants to do is swing the entire 45 minutes.  The only time he perks up is when his speech therapist comes to get him.  His new OT seems like a perfectly wonderful person and she has been with the facility for quite some time but for whatever reason my son is not impressed.  We have had three sessions and the situation does not seem to be improving.  I feel I have to ask to see another therapist because this situation is not helping our son improve.  It is common knowledge that changes in routines are deeply upsetting to children with autism, then why does this facility keep reassigning my child to new therapists every couple of months?  This brings me back to the support issue.  Not one person from this company has offered in suggestions to help during this time of transition.  Again, I find myself navigating through this mess alone.  One in forty some parents have a child with autism, yet we find ourselves alone.  That is a problem.

My OT Is Burned Out?

Much to my dismay, we were just notified that my child is going to get a new OT.  This will be our third OT in 5 months.  So far my son has done well with these changes but at some point he may not do so well if this keeps happening.  Now I have to go through everything yet again with someone new.  I asked why this keeps happening and I was told and we have noticed at other facilities there is a high turnover in OTs.  I asked why that is and it seems they get burnt out after working with these kids.  They get burned out?  They get to go home at the end of the day to a home free of screaming, hitting, kicking, flapping, head butting and food spitting.  We as parents deal with this 24/7.   Maybe I don’t feel so bad now that some days I am so stressed the room starts spinning.